Call me crazy, but I often hear God's gentle whisper while in nature. Join me on the LOMAH instagram page as I question, see, wrestle, and find His truth during our journey to the Land Of Milk And Honey (LOMAH).
My email has been flooded with positive feedback about this week’s episode w a self advocate living w #cerebralpalsy She shares how we can best come alongside others w a #disability
The link is in our bio.
#specialneedspodcast #lomahpodcast #disability #differentnotless #disabilityadvocate #specialneedsfamily #cerebralpalsy #differentandable #slp
Who is rocking their socks for #worlddownsyndromeday2019 ?
Last summer we did a safety series on the #lomahpodcast and my big take away was the importance of cultivating communication in our kiddos. !TOP PRIORITY! Sooo...I no longer expect literacy and best AAC practices are happening at school. It’s too important to “orphan out” these skills.
Today I had to brush out tangles in my daughter’s hair which presented great opportunities. By the time the last tangle was removed, she was able to form “no thank you you hurt me see you later”
The 12 episode safety series can be found on the LOMAH Special Needs Podcast and ran last summer. We discussed trauma indicators, sexual assault, wandering, and so much more. Link in bio or search your podcast app.
Using her communication device paired with her own voice and an interpreter, Angela West shares her thoughts on two topics:
1) What are we unknowingly doing as parents, providers, and supporters of individuals with disabilities that may come across as disrespectful?
2) What types of things did Angela’s parents and supporters do well when she was young to bring her to a place of accomplishment as an adult?
Link in bio or search “LOMAH Special Needs Podcast” your favorite podcast app
#monday #specialneedsfamily #specialneedsmom
Thank goodness for Miranda’s teenage sister.
Picture 1: Our reading program has a picture match exercise. I couldn’t figure out how to draw funny. Teenage sisters, on the other hand, know exactly how.
Picture 2: The bedroom redecorating continues as Miranda’s sister claims it needs to be more “teen”
#specialneedssiblings #specialneeds #specialneedsfamily #specialneedsparenting #autism #edmarkreadingprogram
Shout out to all the #specialneedssiblings who bring dignity to their brothers and sisters! Miranda’s sister was insistent we have an outing to redecorate Miranda’s bedroom to look more “teenage” complete with supporting her sister in choosing the decor. She also polices the way I dress her. “Mom stop dressing her like you dress yourself. She looks like an old lady.” Sibs are the best!
#specialneedsfamily #specialneedssiblings #autism #autismfamily #specialneedspodcast #lomahpodcast #lomah
Self care is a way to set ourselves up for success. In a recent podcast w @sandrapeoples we discussed how bubble baths or more sleep simply are not possible for many of us. However, drinking more water is.
Next week has the potential to be a doozy around here and the hubs will be out of town and unable to talk me down if/when needed so self care (setting up for success) looks like tossing a bouquet in the grocery cart, getting a music playlist ready, and ensuring there are matches for the scented crackling candle.
Take care of yourselves, folks.
#specialneedsparent #specialneedsmom #specialneeds #specialneedsfamily #lomah #specialneedspodcast #lomahpodcast
The daddy daughter cuteness is off the charts tonight. #autismdad #autismdaddy #autism #specialneeds #specialneedsfamily #specialneedsdad #specialneedspodcast #lomah #lomahpodcast
One of the many barriers to #inclusion is the ability to use a public bathroom. How crazy is that?
On the podcast this week are ways for you to join the #advocacy movement to bring adult sized changing tables to public restrooms from simply spreading awareness all the way to advocating for updates in ADA law.
Notes, valuable links, and access to the conversation can be found via the link in our IG profile bio.
#disabilityadvocate #disabilityrights #disabilityinclusion #disabilityadvocacy #specialneeds #specialneedsfamily #cerebralpalsy #cerebralpalsywarrior #lomah #specialneedspodcast #lomahpodcast
Translation = Miranda had a headache and wanted medicine!
It is so cool how our kiddos get their point across. We just have to assume and recognize they are communicating in the best ways they know how.
#autism #specialneeds #slp #aac #augmentativecommunication #touchchat #specialneedspodcast #lomah #specialeducation #specialneedsparent
It is rare I travel without the family and travel with the family looks more like a caravan thru a dessert than a jet plane in the sky.
I become a camel with bags bags and bags. A bag filled with diapers and change of clothes. A bag filled with food. A bag filled with entertainment.
So this solo trip finds me ill prepared as the freedom of not caring for others carried me away a bit too far, perhaps.
What is this Southwest boarding process?
What did you say? C-35 is not desirable?
Hmmm. I’m sure I’ll be fine. I’m always the middle seat, but with a lot of bags and a lot of work tending to those around me. So, neighboring seatmates, let me know if you need anything. Just so long as it’s not a snack or change of clothes.
This week we chat with @togetherforchoice about advocating for housing options and then we take a deep look at the connection between Fair Labor Laws and employment. Full episode found at the Link in our bio
#specialneeds #specialneedspodcast #specialneedsparents #specialneedsadvocate #specialneedsfamily #lomah #lomahpodcast
My mother just said, “Well, no pretty sunset tonight. Everything is gray”
Allow me once again to swoon over the color gray (you may have seen my post last week about this magnificently rich color)
Tonight I look at the gray sky and feel as if I can take my hand and brush its surface. As if made of chalk dust I feel each rub will reveal the color hiding within. I again am reminded of the secret and gray beauty of my life as a special needs parent and feel sorry for those outside our community who fail to take the time to see all the colors that hide within. We truly are #theluckyfew ☁️🌈☁️
#specialneeds #specialneedsparenting #disability #specialneedsfamily #specialneedsmom #disabilityadvocate #specialneedspodcast #lomah #lomahpodcast
Our advocacy series continues with a sibling advocate who, after learning her sister with severe disabilities was sexually assaulted at her day program, began an advocacy organization to bring about changes in policies and procedures to provide additional layers of protection for this vulnerable population.
Click the link in our bio for the full interview.
#disability #advocacy #specialneeds #specialneedssiblings #specialneedsfamily #metoo #theluckyfew #specialneedspodcast #lomahpodcast #lomah
The color grey is made with yellow, blue, red, and a touch of white. It is not drab and depressing but rather all things swirled together.
Some may see our lives in black and white. They see the black of things causing sadness, exhaustion, and worry . They see the white of when things go as planned or bring pleasant surprises. However, I have come to see gray in it all. I can now see the yellow, blue, red and touch of white and it takes my breath away.
(photo from our weekend trip to #tahoe )
#specialneedsparenting #disability #specialneeds #specialneedspodcast #lomahpodcast #lomah
Again...with this lesson about myself as a parent advocate. It’s such a hard balance to master! (Follow our IG Story for today’s ski adventure!)
#parentadvocate #advocacy #disability #differentandable #adaptivesports #lomahpodcast #specialneeds #specialneedsmom
Happy Valentine’s Day to all who are able to see the world with a unique twist!
A thru line emerging in our advocacy series is the importance of us showing up.
In this week’s episode I share what showing up at my church looked like. I attend a multigenerational church and many sitting around us each week grew up with out inclusive environments and thus little to no exposure to individuals with differing abilities.
Listen to the episode (link in bio) to hear how it started and how it’s going.
Also, @sandrapeoples of @keyministry shares with us encouragement and tips for both churches and families for inclusive worship experiences.
AND there is a bit of a call to action for those who have exposure and experience within special needs circles to step into a calling of supporting the church and its families. #slp #occupationaltherapist #spedteacher
#inclusion #specialneedsministry #advocacy #specialneeds #specialneedsfamily #disability #theluckyfew #church #ministry
At times, I long to be absorbed by beauty.
Once, I swam out past the breakers. All around me the colors swirled and the textures shifted, yet I stayed the same.
I felt other than. I felt separate, different, and as if I did not belong and this sea of beauty.
Tonight at the same spot, I remembered that evening and those feelings in the ocean.
Then, an otter swam by and the surfers played in the same swirling colors and shifting textures. Yet, they did not seem separate. They belonged. They brought fun and bits of surprise. They brought a smile to my lips.
Could that have been true of me, too? That day In the water I felt I did not belong? Could the things that keep us separate and “other than” be the same things adding elements of surprise and a smile to the lips of others?
I think so. I think we all belong, even when it feels as if we don’t.
#inclusion #specialneeds #disability #theluckyfew #specialneedspodcast #lomah #lomahpodcast #specialneedsfamily